![]() ![]() Lyn Long wrote: 'One of the bravest little girls I know who put up the biggest fight. 'My heart and thoughts go out to Edie's unbelievably amazing, brave and strong family, that did everything in their power to help Edie to try and fight this.' You were an inspiration and a fighter who will never be forgotten. Sally Holloway commented: 'RIP beautiful brave princess Edie. The Edie's Fight Facebook page had garnered almost 6,000 members - and dozens of people have already paid their tributes to Edie. But the response and generosity we have received so far is overwhelming and we are so grateful.' Lois's work situation will have to change and it has turned life upside down. 'We could never have been prepared for this. ![]() 'The harsh reality is that illness and disease does not discriminate, and whilst we would trade everything we have for Edie to be OK, we are going to need some help,' Craig said at the time. The proud family were initially against starting a fundraiser, but were overwhelmed by the response. Weakness of facial muscles or facial asymmetry (one side of the face appearing different from the other)Įdie started radiotherapy on December 2, while her parents set about researching specialists all over the world who are working to find an effective treatment strategy for DIPG.Ĭraig said their daughter was an 'absolute star' and stayed very brave and strong throughout her ordeal.Abnormal alignment of the eyes or/and double vision (diplopia).The cause of brain tumours, including DIPG, is not yet known.Ī child with a DIPG may display certain symptoms including: The pons is an area deep within the lower part of the brain which is responsible for a number of critical bodily functions, such as breathing, sleeping and blood pressure. They are sometimes referred to as being 'malignant' or 'cancerous'.ĭIPGs originate in an area of the brain, and more specifically the brainstem, called the pons. High grade brain tumours tend to grow quickly and are more likely to spread to other parts of the brain or spinal cord. ![]() Diffuse Intrinsic Pontine Glioma or 'DIPG' has recently been renamed 'Diffuse Midline Glioma' and is the second most common type of primary, high grade brain tumour in children. ![]()
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